Hello and Good Evening/Morning to everyone and welcome back to Afterthoughts, westcoastmeshfighter. Stuck between two worlds living with a Transvaginal Mesh Implant. The last few weeks have been tough, I personally felt like my heart strings were being pulled so hard, that maybe I couldn’t take it, also dealing with my conditions and trying to be a mom to five teens. The worst was not being able to do things that I used to do. I have been trying for 4 years now, to try and rise above what was happening, so it starts multiple PCP’s and 4 Urogynocologists, many blood tests, IV Antibiotics, pain meds in hospital out of the hospital because abdominal pain was so bad and had a responsible record with my prescriptions.
Neither My Primary Care Physician and Gynecologist that was treating me at the time had explained why, my new doctor left the women’s department I had a mesh implant surgery, I believe they were acting in my best interest and this happened. I accept that because I really agreed with it, with the exception that more investigating should have went into the mesh devices and they should have been conducted first and Now Look at the Mess they have Made of Us and our Lives as We Knew It.
Our Healthcare, now I can’t give to much about what I found regarding laws, because I am not a lawyer, however at the end of this blog will be web info on my sources. I feel that as a Patient, I investigate so much, we are not getting told anything, No letters with explanation and we should have a lifetime life coach or a class on loving yourself, helping yourself and doing what makes you happy right???
Patient Rights, I found the info on Patient rights, from local, state to federal. There are advocate representatives that are supposed to help family’s due to a family member becoming disabled. I also reread the ADA and nothing has changed there, I will makes some calls and see where that takes me.
Onto our Healthcare, I started Medi-Cal when I had to leave my employer. That part was difficult and I knew that I would be forced to go onto it What is missing here is justice, Some have been robbed of their enjoyments, life, etc. I don’t go to the store alone and because of lifting, I usually have a family member with me to help, I just started to do things that are less strenuous., so that overwhelming feeling doesn’t come on to strong. I still am getting Anxiety Attacks and can’t figure out why. At first, I used to go to county clinics and the experiences worse than good. I was always seeing a different doctor and 2 different gynecologists.
With every doctor appointment, came more procedures, more tests, and physical therapy, more this paper says this and this paper says that and it’s acknowledged that I am permanently and physically disabled and must have a care giver. This pain I experience is nothing good, it’s pain, so painful I go to a hospital and then treated like nothing is wrong with you. I was forced to file appeals with my healthcare insurance company and after I received my letters that they were investigating and I never received nothing back, no letter of explanation the doctor was blaming insurance and vice versa.
I will blog more in the future because things are constantly changing. I requested a new Nurse Case manager, Gynecologist and Internal Medicine 1st call. I have decided that I need to be able to do certain things just to make things a bit more comfortable for me. I will be making an appointment with disabilities advocate for California residents. My family has been torn apart and as they continue to get older, I pray there is a way I can get us all back together.
If you need help, you can file a grievance and switch doctors until you find someone who wants to really treat you instead ignoring the issues, and refuse to treat because they can’t see what is wrong and they had me doing injections. I have been always from the prescriptions for a long time, the county clinics have done away from, the,/
Ok so here in California, if you are not working you may qualify for food stamps, medical insurance and cash, also we have plenty of food banks where you can go and get some food and clothes for you and if you have a family they may be in need too. I can’t even imagine the emotional roller coaster, my heart goes out to you with everything you are already dealing with.
I often wish that we could ban together , however time, location and distance places a part as well.
When u have to the doctor for 10 years of appointments, (when I was with private insurance) tests, conversations about life and what I wanted to do and after that I was referred to another urogynocologist and do all follow-ups, when I first received this info, I was shocked because I really had no help, no ideas and everyone I had called said they programs but many of us don’t qualify due to credit, so if have someone helping you, I don’t know about all of you. but I really thought my some of my relatives would help us out however, everything worked out. It’s interesting and puzzling that the answers are right of me, but I get so stressed. Anyways, I contacted my insurance options and then I received treatment for this at least, Mesh Still a ?? This weekend is coming and I may do another video on different ways to comfort our selves. #pamperyourself
If you are interested in getting your insurance to help you with your treatment, give you the information and you need to get yourself some love, we all deserve it, call your insurance and request a Nurse Case Manager for takes about a month or too before you are, so patients is going to play a big role, but it’s worth it in the long run.
As always I want to remind everyone that I am not a lawyer, doctor, medical professional, however I am a patient living with the underlying side effects from this product. Everything I share with you is just information and my Personal Journeys living with a Mesh Implant in your body your rep should walk you through the process. We have rights as patients for care.
Thank you all for reading until next time… stay strong, for your Mesh Family is rooting for you.
Michelle Hedgcoth, Co-Founder of westcoastmeshfighter, #tvmwarriorandsurvivor
Below are some important facts along with their information, for Californians I hope these public resources are available to you.
Disability rights for CA
California’s protection & advocacy system
For legal assistance call 800-776-5746. For all other purposes call 916-504-5800 in Northern CA
or 213-213-8000 in Southern CA. TTY 800-719-5798.
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CALIFORNIA OFFICE OF PATIENTS’ RIGHTS
Disability Rights California
1831 K Street
Sacramento, CA 95811
Telephone (916) 575-1610
Fax (916) 575-1613
WHAT IS PATIENTS’ RIGHTS ADVOCACY:
Advocacy is the process of promoting and representing patients’ / individuals’ rights and interests through direct assistance, monitoring, training, and policy review. California has a legislatively mandated Patients’ Rights Advocacy system made up of three components:
California Office of Patients’ Rights
State Hospital Patients’ Rights Advocate’s
County Patients’ Rights Advocates
WHO ARE THE PATIENTS’ RIGHTS ADVOCATES:
The Patients’ Rights Advocates (PRA) in the state hospitals are employees of Disability Rights California. The California Office of Patients’ Rights is contracted by the Department of Mental Health to ensure that the treatment and legal rights of people receiving mental health treatment are maintained.
Disability Rights California is a nonprofit agency that provides legal and other advocacy assistance to people with disabilities. Disability Rights California began protecting the rights of Californians with disabilities in 1978.
Under the contract with California’s Department of Mental Health, Disability Rights California operates the California Office of Patients’ Rights (C.O.P.R.) to provide support to Patients’ Rights Advocates in the counties and employs a Patients’ Rights Advocate at each State Hospital to directly advocate for the rights of people with psychiatric disabilities.
The legislative mandated duties of the Patients’ Rights Advocate are:
To investigate and resolve complaints received from individuals about violations or abuse of their rights and/or to cause the investigation of such complaints.
To act as an advocate for individuals who are unable or afraid to file a complaint.
To monitor facilities for compliance with patients’ rights, laws, regulations, and policies.
To train staff in areas regarding patients’ rights, laws, regulations, and policies.
To assist staff in ensuring that all individuals are notified of their rights, including the right to contact the Advocate and the California Office of Patients’ Rights.
To act as a consultant to mental health professionals in the area of Patients’ rights.
To act as a liaison between the facility’s advocacy program and the California Office of Patients’ Rights.
In addition to the legislatively mandated functions above, the DMH contract delegates to the California Office of Patients’ Rights the responsibility for coordinating the hospital patient complaint process, to include the intake and tracking of all complaints, identification of patients’ rights issues for advocate investigation or response and the referral of all other complaints to appropriate program/department staff for response and/or resolution.
Our main office is located in Sacramento (address above)
Main Office Staff
Michele Mudgett – Director
Ann Coller – Patients’ Rights Specialist
Agnes Lintz – Patients’ Rights Specialist
Jame Chang – Appeals Coordinator
Griselda Alvarez – Office Manager
Atascadero State Hospital
Manuel “Lucas” Campos, Patients’ Rights Advocate
Kathy Kalem, Patients’ Rights Advocate
Coalinga State Hospital
Daniel Wagoner, Patients’ Rights Advocate
Nayeli Estrada, Assistant Patients’ Rights Advocate
Metropolitan State Hospital
Warren Rogers, Patients’ Rights Advocate
Maria Garcia, Patients’ Rights Advocate Assistant
Napa State Hospital
Kelli Hagstrom, Patients’ Rights Advocate
Melina Llamas, Assistant Patients’ Rights Advocate
Patton State Hospital
Priscilla Torres, Patients’ Rights Advocate
Paula McCord-Watier, Supervising Advocate Specialist
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UNTIL NEXT TIME… ENJOY LIFE FORE, YOU CANNOT GO BACK TO RETRIEVE IT!